Naya's had a roller coaster 10 day span. She is struggling to keep healthy sodium levels in her system, so she's good for a couple of days, then ends up in the hospital. Last week, she went to a photography class, school, and the PICU to get fluids for very low sodium. She bounced back a day later and had a good weekend, but was admitted yesterday for the same issue. This time, her doctors want to monitor her and figure out a better plan so that we can manage her sodium from home. Needless to say this is tough on all of us, but especially Naya. This issue is caused by her disease and happens to people with brain tumors or brain injuries. Unfortunately, we haven't been able to manage it well due to her extreme fluctuations. All the more reason to support the cause and find a cure. TeamNaya has raised over $105,000! So far, 140 people are planning to come, and we expect more the day of the race. Naya is by far the largest fundraiser and has set an example of what can be done if you set a big goal. All of the funds are being directed to the Neuro Oncology research fund with a specific focus on brain cancer research. This is a big donation to give to that team, and they are very appreciative. Thank you for your amazing support!
I would like to call out many people who have supported us from our circle of friends and the community. Over 400 people have donated this year, including many people we have not met but have heard Naya's story. Our friends from TE Connectivity, Sapient (current and alum), McCann/MRM, SR Research, Benari Jewelers, PerLei, Alliquippa Stables, The Haverford School, Agnes Irwin, Media, Newtown Square, Lancaster, Ohio, Denver, SanFrancisco, Boston, Florida and beyond have been with us all the way. And, finally, our families who love Naya and us and would do anything to support us.
For those of you coming to the race, we will have tshirts for everyone, and will be selling TeamNaya DriFit t-shirts and ponies. DriFit shirts will be $25, and the ponies are $20. All proceeds will go to CHOP.
Below are game day details. We are hoping to get some group pictures too, so if you can stay a few minutes past the race time, please do.
Date: Sunday, September 28, 2014 (rain or shine) Location: Four Seasons Hotel Philadelphia One Logan Square 18th Street & Ben Franklin Parkway
Meet at the Team Naya tent
Schedule: 7:00 a.m.- Registration Opens. Event Day fees: Adults $35 & Kids $15 (12 & Under) 7:30 a.m. - 8:15 a.m. - Pick up your t-shirts and running badges at the TeamNaya tent. If possible, we'll take a picture around 8:15. 8:30 a.m.- The 5K Run Starts. The 2K walk will begin after the start of the 5K run. 9:45 a.m. - Awards ceremony 10:10 a.m. - AIS and Haverford school picture (meet at Team Naya tent) There will be breakfast served after the race courtesy of The Four Seasons.