Amanda's Story

I met Amanda Haddock through email and Facebook. We have a lot in common. Our kids lost their lives to brain cancer, we support similar research efforts and we share a strong belief that scientists can cure brain cancer with groundbreaking research and the power of big data. Amanda and her husband founded Dragon Master Foundation with the goal of using big data to help researchers discover new treatment options for childhood cancer. With Amanda's permission, I've republished an entry she wrote that may help people move forward when losing a loved one. It helped me when I read it. This is taken from her blog "This Grey Matters".
Amanda Family Image
How Do You Answer the Hard Questions?

Whenever I talk to a family about brain cancer, I tell them they can ask me anything. Normally they ask me sensitive questions about the end of life or navigating treatment. But sometimes, tougher questions come out. The toughest one is "how do you go on without your son?" There are many answers to this question. First, would be that my other family members need me. But second would be that my son would want me to be there for these people. It doesn't make it any less bone-crushingly sad. On the contrary, walking through hell with these families is horrific and hard. It's been six years since we heard the words brain cancer, a little more than four since David was taken from us. And while many point to the successes of the foundation and the progress in research that we've helped with, I can't see that. All I see is the next person in treatment with no clear treatment path. I've been a fairly selfish person for most of my life but now all I see is other people's need. David always had that sight so maybe he passed some of it along.

Right now, somewhere a family is agonizing over their loved one's last breaths. Right now, somewhere a family is hearing that the diagnosis is terminal. I know there will always be freak accidents that steal our loved ones away, but cancer isn't like that. It's a disease that we are on the verge of finding cures for, but each day that passes steals away another life.

People struggle with the meaning of life, but I know that the thing that gives my life purpose is making the way easier for others. That used to be through simple things like doing my job well or making lunch for a teacher at school. Now it is by helping push scientific research forward. And I can do that even though I made a C in Mrs. Coley's Chemistry class. And you can do it, no matter what your background is. We all have power. We all have a voice. Let's use it to end cancer now. Right now.

Naya Story
When Naya was very young, there was something about her that screamed, "I'm going to make an impact on the world."

Naya strove to enjoy every day in a manner that was full of grace, love, happiness and laughter; and her determination to enjoy life didn't change even as she fought to overcome cancer. Her love for life continues to inspire thousands every day.

Learn more about Naya Orange learn more link
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